EUFAMI @BULLETIN 3&4 APRIL - MAY 2016
Double edition & New staff at EUFAMI
Prism project launched
Public Policy Exchange workshop
Our Secretary-General Aagje Ieven was invited to be a key note speaker on the topic of ‘young people and mental health’ during a workshop organised by Public Policy Exchange in Brussels on April 26th. Aagje shared her expertise in EU advocacy and EUFAMI's views on mental health and young people with an audience of researchers.
EUFAMI @BULLETIN 2 - FEBRUARY 2016
Caring for Carers Survey - C4C
On 12th January, EUFAMI & LUCAS’ Caring for Carers (C4C) survey was the focus of a Joint Meeting of the European Parliament Interest Group on Carers and the Interest Group on Mental Health, Well-being and Brain Disorders. MEP Marian Harkin opened the session, which was also attended by MEPs Heinz Becker, Nessa Childers, Jean Lambert, Sirpa Pietikainen and Cristian Silviu Busoi.
Prof. Dr. Chantal van Audenhove (LUCAS KULeuven) presented the survey on behalf of EUFAMI, and pointed towards the inadequate recognition of family carers in mental health care despite high, cumulative and long-standing demands made on them. The presentation clarified the urgent need for a paradigm shift that views family carers as a resource and a partner in the care requirements of persons with severe mental illness. Other speakers included Spyros Zorbas (KINAPSI Greece), John Dunne (Eurocarers), and Jürgen Scheftlein (EC DG Sante). Also in attendance from EUFAMI were Bert Johnson (President) Nadine Fossion (Board Member and Secretary) and Aagje Ieven (Secretary General). The results of the C4C survey were fed into the EC DG Justice consultation on working carers. Meantime, the C4C survey has also been published in Spanish on online publication GeriatricArea.
With the close of 2015, the ADOCARE project, in which EUFAMI was a collaborating partner and advisory board member, came to an end. The project’s aim was to create an EU network of experts in the field of adapted care for adolescents with mental health problems, as the burden of mental illness is high in this age group while service provision is lacking in many ways. You can download the outcomes and recommendations in ten different languages here: English, French, Dutch, German, Italian, Spanish, Lithuanian, Hungarian, Swedish, Finnish
@Bulletin November 2015Click on the Pictogram to download as pdf
First Family Organisation ever established in Bulgaria
Following EUFAMI’s recent Family Congress held in Sofia, Bulgaria two months ago, we now received news that the very first family organisation, representing carers of people suffering from mental illness has been created. It is named "Association of Family for Partnership in Psychiatry" and its acronym is BGFAMI.
The establishment is a direct outcome of Bulgarian carers attending EUFAMI’s congress who felt empowered and decided to establish this association to contribute to the developments of psychiatric care for users and family carers in Bulgaria.
Needless to say that we are delighted with this initiative and hope to remain in close contact with BGFAMI so we can support them in their efforts to advocate for carers in Bulgaria.
AWARH – Awareness Week on Alcohol related Harm
The AWARH was held this year from the 16th to the 20th November. The week was initiated in 2013 by a group of like-minded following three on an integrated approach to alcohol-related harm. During the roundtable meetings,agreed that an EU-level awareness raising campaign should be established to provide information on the detrimental effects associated with alcohol consumption. Many policymakers and healthcare organisations joined with the AWARH to highlight the negative effects of alcohol and call for greater policy action to address the problems it can cause, through improvements in Prevention, Education, Screening, Treatment and adequate services The ultimate aim is to highlight the need to tackle the significant barriers to a comprehensive and cost-effective policy intervention. Find out more about this initiative on www.awarh.eu.
@Bulletin January 2016
EUFAMI President’s New Year message
At this turn of the year it is again a great pleasure for me to send this message of goodwill on behalf of EUFAMI to our member associations and supporters and all readers of our monthly @Bulletin.
The year just ended saw the completion of two major initiatives which remain current ; these were the Caring for Carers Survey of the experiences of carers of people with severe mental illness and the organisation of our sixth four yearly Congress held in Sofia. Both came successfully to fruition and, of longer term importance, have provided new platforms which we shall be using to strengthen and direct our support and advocacy on behalf of all those whose interests we represent.
The Carers survey report contains a mine of information and evidence confirming the central role played by family caregivers. It concludes that they should be recognised and respected as a full partner with the professionals in the whole process of treatment and care.
The Sofia Congress marked a significant step forward towards realising our longstanding objective to extend our presence and active support for all those in central and eastern European countries who are in such need of it. Already the Congress has encouraged those who took part to begin the task of organising carer groups of their own.
Last year also saw one historic change at EUFAMI with the departure of Kevin Jones as our Secretary-General. Kevin had served EUFAMI for ten years in that leading role and it is not too much to say that his name became synonymous with EUFAMI, known and highly regarded throughout the whole network of our relationships. We are grateful to him and offer him every good wish for his future.
In Kevin’s place we are delighted to welcome Aagje Ieven who comes to us from EUROCHILD, the network of bodies that promotes the rights and well being of children and young people. Her experience there has included the co-ordination of advocacy and campaigns to strengthen families and her earlier background has included work in the fields of health and human rights. An early priority for Aagje will be to make herself known to our member associations and other stakeholders who can expect to hear from her soon.
As we look ahead to the coming year and beyond we shall also want to pursue our other strategic objectives, involving and supporting all our associations effectively and exerting our influence strongly wherever we can make an impact. That will mean sustaining our working relations with the relevant European policy making institutions and the professional organisations of all sorts.
On behalf of my colleagues I should like to reaffirm EUFAMI’s commitment as the voice of family caregivers of those who suffer from a severe mental illness and our wish to work with all others who are dedicated to the same cause of making lives better.
My best wishes for the coming year to all readers of this @Bulletin.
@Bulletin October 2015Click on the Pictogram to download as pdf
Presentations of Major Family Survey Results and Carer Academy at ECNP now Available Online
You can now view the ECNP webcast of the very first EUFAMI carer symposium ” which took place on 29th August 2015 at the ECNP Congress in Amsterdam. See and hear Bert Johnson, President of EUFAMI President, Professor Shitij Kapur and Dr Juliaa Onwumere from Kings College London and Chantal Van Audenhove from LUCAS Research Institute Leuven speak about “The Emerging Role of the Carer: How healthcare systems need to change”. http://bit.ly/1Ly7OOA
In Memoriam Pedro Montellano
It was with great sadness that we heard about the untimely passing of Pedro Montellano, Gamian President. It came as a great shock and sadness to all of us who worked with Pedro on many endeavours in the field of mental illness from the standpoint of the users of services and their family caregivers alike. Pedro was indeed a large presence in our lives, always warm and caring, good humoured and enthusiastic, and extremely knowledgeable and expert as a professional representative. He was above all a man of true humanity whom we shall miss greatly. It was a real privilege to have known him. EUFAMI sends condolences to Pedro’s family.